The St. Louis American Parkinson Disease Association Information and Referral Center is located in Chesterfield, MO and funds the APDA Center for Advanced Parkinson Disease Research at Washington University School of Medicine. The Greater St. Louis Chapter is one of the largest among the American Parkinson Disease Association chapters in the United States.
A message from Dr. Joel Perlmutter– It is with great sadness that I let you know that Dr. Morvarid Karimi died May 21, 2016, at 1:35 pm. She was in the hospital with a ruptured aneurysm for the last 3 weeks and had been gradually improving. On the morning of the 21st she had another major brain hemorrhage and died early that afternoon with her husband, kids and other family surrounding her.
What is APDA All About?
Take a look at the video below to get a better idea.Dr. Paul Short, the Parkinson’s Coach, recently hosted a live webinar for care partners called Pushing a String: When Your Powers of Persuasion Don’t Motivate a Person with Parkinson’s. Click here to be re-directed to Dr. Short’s website to view archived footage of the webinar.
In The News:
Our chapter was featured in last week’s Ladue News as one of nine charities chosen for the Ladue News Charity Awards! Click here to be re-directed to their website to view the edition online.Executive Director Debbie Guyer was interviewed by Art Holliday from KSDK about the impact that Muhammad Ali has on the Parkinson’s community. View the segment from the evening news here. Our national leadership was recently featured in an article about Muhammad Ali and Parkinson’s. Read the article featured in the New York Daily News here. The APDA-Greater St. Louis Chapter was chosen as the charity for Chief Meteorologist Steve Templeton’s 4 Degree Guarantee on KMOV for the month of April. Every time that the KMOV forecast was within 4 degrees of the actual high, KMOV donated $50 to our charity. Steve and his team raised $1,050 for us in April, which was matched by Cardinals Care for a grand total of $2,100! See below for photos and video from the check presentation. Tremble Clefs
Join us on Saturdays from 1:30 pm to 2:45 pm at Salem United Methodist Church in Ladue
Join Linda McNair, music therapist, at this free program for people with Parkinson’s, their family members and care partners. The goal of this group is to be a participant-led, musical experience. Through vocal exercises, singing as a group, and playing instruments, members will come together and bond over a shared joy of making music.
If you missed the Tremble Clefs’ last performance, visit our YouTube channel to watch a recording!
**Tremble Clefs will be on break for the month of July, with classes resuming in August.Our 18th Annual APDA Golf Classic in Memory of Jack Buck held on May 16th was a huge success! Photos from the event are on the right side of the screen under “Golf Photos.” For a full write-up of the event, please visit our golf page.
The APDA has launched a nationwide spotlight webinar series highlighting different areas of Parkinson disease research, advances and programming. Visit our webinar page to learn more about this new program, for upcoming dates and to view archived presentations! We will also be listing a limited number of other pertinent webinars on this page, so check back often! We are starting a PEP series for 2016 called Tools in the Toolbox. See the PEP page for upcoming events, or to catch recordings of previous PEP meetings and conferences.
The World Parkinson Congress is a conference offered every three years that provides an international forum for dialogue on the latest scientific discoveries, medical practices and caregiver initiatives related to Parkinson disease. The conference will be held on September 20-23, 2016 in Portland, OR and is open to everyone in the community who is affected by Parkinson’s. Visit the World Parkinson Congress website for more info and updates! Parkinson Community Resource Center
Drop by and visit this unique destination for those impacted by this disease. Group participation programs including exercise class, Tai Chi, Wellness Course, PD101, Care Partner & Young Onset support groups, LOUD CROWD, and others will take place at this Center. Our resource library is bursting at the seams with new materials for your perusal on a wide variety of topics, including recent publications, DVDs, CDs, books, and community resources. Small adaptive equipment is available on site. 1415 Elbridge Payne Rd. Ste. 150, Chesterfield, MO 63017, Hours Monday to Friday from 7:30 am to 4:00 pm.
The primary function of our Center is to serve as a central location where people with PD, caregivers, medical professionals, students and other interested individuals can call or write to receive the latest information.
What is Parkinson Disease?
Parkinson disease (PD) is a chronic neurological disorder due to the lack of the chemical dopamine in the brain. Dopamine controls movement, posture, and walking. Common symptoms of the disease are tremors, rigidity and bradykinesia (slow movement). Other manifestations of PD may include stooped posture, speech and swallowing problems, a mask-like facial expression, shuffling gait, arms kept fixed to the side of the body when walking, difficulty with fine hand movements and micrographia (small handwriting). Parkinson’s symptoms may appear on one or both sides of the body. Signs of the disease have a slow, gradual onset. The cause of PD is still unknown.