The American Parkinson Disease Association- Greater St. Louis Chapter is located in Chesterfield, MO and funds the APDA Center for Advanced Parkinson Disease Research at Washington University School of Medicine. The Greater St. Louis Chapter is one of the largest among the American Parkinson Disease Association chapters in the United States.
The American Parkinson Disease Association St. Louis Chapter’s mission is to enhance the quality of life for people with Parkinson disease, their families and care partners in our communities within Missouri and Southern Illinois and to provide funding for ongoing Parkinson disease research.
The American Parkinson Disease Association St. Louis Chapter’s vision is to expand significantly its patient services and education programs to better meet the growing and unmet needs while maintaining its commitment to fund Parkinson disease research.
What Does the APDA Do?
The primary function of the American Parkinson Disease Association- Greater St. Louis Chapter is to serve as a central location where people with PD, care partners, medical professionals, students and other interested individuals can call or write to receive the latest information, including FREE printed material, medical and support system referrals, quarterly newsletters, exercise classes, support groups, educational programs and much more. The Chapter also informs individuals about current studies and research projects related to Parkinson disease in which they might wish to participate.
Public awareness and educational programs play a vital role in the Chapter’s activities. The American Parkinson Disease Association- Greater St. Louis Chapter has published the well-received book entitled Coping With Parkinson’s Disease for the benefit of people with PD and care partners alike and A Collection of Helpful Hints for People With Parkinson’s Disease. The American Parkinson Disease Association- Greater St. Louis Chapter has also produced “FIT ‘N FUN,” a therapeutic PD home exercise video and “Caring For A Nursing Home Resident With Parkinson’s Disease.”
What is Parkinson disease?
Parkinson disease (PD) is a chronic neurological disorder due to the lack of the chemical dopamine in the brain. Dopamine controls movement and posture. Common symptoms of the disease are tremors, rigidity, postural instability and bradykinesia (slow movement). Other manifestations of PD may include stooped posture, speech and swallowing problems, a mask-like facial expression, shuffling gait, decreased arm swing when walking, difficulty with fine hand movements and micrographia (small handwriting). PD symptoms may appear on one or both sides of the body. Signs of the disease have a slow, gradual onset. The cause of PD is still unknown.
Over 1.5 million people in the United States suffer from PD. Most people with Parkinson’s are over the age of 50, although younger age at diagnosis (called Young Onset Parkinson Disease) is commonly seen. Diagnosis is based on a neurological examination which includes evaluation of symptoms and their severity. PD does not affect everyone in the same way. Some people are more severely affected than others. Treatment involves individualizing the various PD medicines available to see which ones help with symptoms the most. Supervised medication adjustments are often needed. In recent years, surgical procedures have been performed on selected patients. In addition to medication, daily exercise is very important for symptom management and well being. Education and support groups also play important roles in helping people with PD, their care partners and other family members cope with this illness. At present there is no cure.
Neurologists at Washington University School of Medicine and other researchers throughout the world are actively working to find a preventative or cure for PD. Each year brings new hope for a brighter future.
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